Bruce Willis’s wife has asked paparazzi to “keep your space” and not yell at the actor, who was recently diagnosed with frontotemporal dementia (FTD).
In an Instagram video, Emma Heming Willis said members of the press attempted to speak to her husband when he was getting coffee with friends.
“If you are someone that is looking after someone with dementia, you know how difficult and stressful it can be to get someone out into the world and just to navigate them safely, even just to get a cup of coffee,” she said.
“In the spirit of raising awareness around dementia, it’s clear that there’s still a lot of education that needs to be put forth. So this one is going out to the photographers and the video people that are trying to get those exclusives of my husband out and about: Just keep your space.”
She added: “I know this is your job, but maybe just keep your space. For the video people please don’t be yelling at my husband, asking him how he’s doing, or whatever, the woo-hooing and the yippee ki-yay’s – just don’t do it.
“Give him the space. Allow for our family or whoever’s with him that day to be able to get him from point A to point B safely. That’s my PSA.”
In her Instagram post, Heming Willis said: “To other caregivers or dementia care specialists navigating this world…. Any tips or advice on how to get your loved ones out in the world safely? Please share below.”
In March 2022, relatives said the Pulp Fiction star, 67, would be “stepping away” from acting following a diagnosis of aphasia, a condition affecting the brain which causes difficulty with language and speech.
Bruce Willis: Hollywood star diagnosed with frontotemporal dementia, family says
What is frontotemporal dementia and how does it affect people?
What is frontotemporal dementia (FTD) and what are its symptoms?
The NHS says that FTD mostly affects people under the age of 65, although older people also suffer from it.
It causes changes to personality, behaviour, language, memory and movement, due to the areas of the brain that it affects (the frontal and temporal lobes).
There are also physical effects, such as slowness of movement, loss of bladder and bowel control and muscle weakness.
As with other forms of dementia, the condition degenerates slowly at first but then gradually gets worse over the years.
There is no single test for dementia: doctors will assess symptoms, carry out tests of mental abilities, take blood tests, carry out brain scans or undertake lumbar punctures.
There is currently no cure for FTD, but treatments such as medicines, therapies and memory activities can help control some of the symptoms.
The average survival time after symptoms start is between eight and 10 years.
In an update in February his family said the condition had progressed and he had been given a more specific diagnosis of frontotemporal dementia (FTD).
“As Bruce’s condition advances, we hope that any media attention can be focused on shining a light on this disease that needs far more awareness and research,” his family said.